Genetic Testing/Counseling

The primary NIH organization for research is National Institute of General Medical Sciences

• Frequently Asked Questions about Genotyping (Center for Inherited Disease Research)
• Understanding Gene Testing (National Cancer Institute) - multi-page document

General/ Overviews

• Frequently Asked Questions about Genotyping (Center for Inherited Disease Research)
• Genetic Counseling (National Women's Health Information Center)
• Understanding Gene Testing (National Cancer Institute) - multi-page document
• Your Genes, Your Choices: Exploring the Issues Raised by Genetic Research (Dept. of Energy, American Association for the Advancement of Science) - multi-page document

Children

• Introduction to Genetics and Genetic Testing (Nemours Foundation)

Dictionaries/ Glossaries

• Glossary (Office of Rare Diseases)
• Glossary of Genetic Terms (National Human Genome Research Institute)
• Jablonski's Multiple Congenital Anomaly/Mental Retardation Syndromes Database (National Library of Medicine)

Directories

• Cancer Genetics Services Directory (National Cancer Institute)

Disease Management

• Health Insurance in the Age of Genetics (National Human Genome Research Institute)

Law and Policy

• Genetic Information and the Workplace (National Human Genome Research Institute)
• Health Insurance in the Age of Genetics (National Human Genome Research Institute)

Lists of Print Publications

• CBM: Genetic Testing for Cystic Fibrosis (National Library of Medicine)

Organizations

• March of Dimes (March of Dimes Birth Defects Foundation)
• National Human Genome Research Institute
• National Institute of Child Health and Human Development

Prevention/ Screening

• Chorionic Villus Sampling (CVS) (March of Dimes Birth Defects Foundation)
• Genetic Testing for Breast Cancer Risk: It's Your Choice (National Cancer Institute)

Research

• Frequently Asked Question About the Role of Genetics in Public Health (Centers for Disease Control and Prevention)
• From Fly to Man: The Kindred Genes of Development (National Institute of Dental and Craniofacial Research)
• From Maps to Medicine: About the Human Genome Research Project (National Human Genome Research Institute)
• Gene Hunt: Success Stories (National Institute of Dental and Craniofacial Research)
• Gene Hunting (National Institute of Mental Health)
• Genetic Testing for Cystic Fibrosis, April 14-16, 1997 Vol. 15, No. 4 (National Institutes of Health)

Specific Conditions/ Aspects

• Genetic Testing for Prader-Willi Syndrome (Prader-Willi Syndrome Association)
• Osteogenesis Imperfecta Issues: Genetics (Osteogenesis Imperfecta Foundation)
• Osteogenesis Imperfecta Issues: Pregnancy (Osteogenesis Imperfecta Foundation)
• Preimplantation Genetic Testing (International Council on Infertility Information Dissemination)